05
Jul
SEEKING TO CREATE A Documentary….
I set out on a mission in 2020 after I lost my best friend and mom, Sharon to Parkinson’s Disease to never forget. I did not want anyone else to...
General Blogs
17
May
While I Still Breathe: by Michael Whelan
There are days now when I carry her more than she walks.
Rebecca has Parkinson’s. It’s not the kind with textbook tremors. It’s the kind that steals slowly, invisibly—tightening...
12
May
I have never been diagnosed with Parkinson’s disease but for many years I deeply studied this condition and what its sufferers go through. I became interested in Parkinson’s because overnight I developed symptoms similar...
20
Apr
WHY STACK DON’T CRACK?
The Stack Don’t Crack Challenge draws attention to one of the more than 40 distinct symptoms of Parkinson’s disease: the impairment of Fine Motor Skills. This symptom encompasses the subtle yet...
19
Apr
We would like to invite you to join us for the NewYork – Presbyterian 2025 Annual Parkinson’s Disease Symposium for Patients, Caregivers, Community Partners, Allied Health Professionals, and Physicians in honor of Parkinson's Disease Awareness Month. Please...
31
Mar
My journey after 4 back surgeries and every procedure available…. Now the Spine cord Stimulator- Failed but not because of the technology…
Day 1, Spine Cord Simulator Trial 3/27/25 Thursday
Installed the temporary for trial...
23
Mar
What I have learned from decades of pain and dystonia By Tom Seaman
As I reflect on my 24 years (as of 2025) living with dystonia and pain and other symptoms that changed my life...
22
Mar
My fear that the pain will continue for decades to come….
After four failed back surgery attempts, I am heading to the Spinal Cord Stimulator.
I woke up at age 42 and could not move from...
21
Mar
Dedicated to the entire law enforcement community and Parkinson’s community because we are in this fight together for awareness and hope for a cure.
Click here to order a copy and support research toward awareness for Parkinson's...
11
Mar
How does MR-guided Focused Ultrasound treat tremors?
Magnetic resonance imaging (MRI) aids surgeons by providing high-resolution images that offer precise visual details, enabling accurate targeting of treatment areas and continuous monitoring of progress. During treatment,...