Parkinson’s Awareness

Adira Foundation envisions a world where people with neurodegenerative diseases are living fully. https://adirafoundation.org/

The American Parkinson Disease Association provides the support, education, and research that will help everyone impacted by Parkinson’s disease live life to the fullest. https://www.apdaparkinson.org/

Cure Parkinson’s Trust is a leading Parkinson’s medical research charity totally committed to slowing, halting and reversing the condition and ultimately improving the lives of those affected by the disease.
https://www.cureparkinsons.org.uk/

DOB Parkinson’s Charity, is dedicated to providing support and resources to individuals and families affected by Parkinson’s disease. We offer a range of services, including financial support, speaking engagements, and resources to help you better understand and manage the condition. https://dobparkinsonscharity.com/

Drive Toward a Cure pursues an alternative to the numerous ‘for profit’ rally driving programs through the creation of events that team cars and camaraderie to raise funds and awareness to support the challenges of Parkinson’s Disease, benefiting research and patient care.
https://www.drivetowardacure.org/

Kathleen Kiddo Heather Kennedy is the founder, an advocacy site offering resources and connection through her writing and vlogs. An entertaining speaker known for her unique talks and film presentations about living with Parkinson’s. https://www.kathleenkiddo.com/

Gray Strong Foundation mission is to help individuals and their families move forward with Parkinson’s. All while raising awareness in the community. https://www.graystrong.org/

Handstand for Parkinson’s goal is to inspire and educate others to look after themselves and get active, advocate for others and help others advocate or support the cause and see worth in through love.
https://handstandforparkinsons.com/

The Michael J. Fox Foundation is dedicated to finding a cure for Parkinson’s disease through an aggressively funded research agenda and to ensuring the development of improved therapies for those living with Parkinson’s today. https://www.michaeljfox.org/

Parkinson’s Europe provides information and resources to all Parkinson’s stakeholders, raise awareness of the disease’s complexities and impact, and advocate for concrete policy change that benefits the Parkinson’s community.
https://www.parkinsonseurope.org

Parkinson’s Australia advocates for the Parkinson’s community on issues of national significance.
https://www.parkinsons.org.au/

Parkinson Canada is the voice of Canadians living with Parkinson’s disease. From diagnosis to discovery. You can count on us to be there at every step of your Parkinson’s journey. https://www.parkinson.ca/

Parkinson & Movement Disorder Alliance nonprofit on a mission to empower people impacted by movement disorders with the tools and meaningful connections they need to thrive today.  https://www.pmdalliance.org

ParkinsonsDisease.net works to empower patients and caregivers to take control of Parkinson’s disease by providing a platform to learn, educate, and connect with peers and healthcare professionals. https://parkinsonsdisease.net/stories/

PD Avengers is a non-profit organization is a global alliance of people with Parkinson’s, our partners and friends, standing together demanding change in how the disease is seen and treated. https://www.pdavengers.com/

Parkinson’s Foundation makes life better for people with Parkinson’s disease (PD) by improving care and advancing research toward a cure. In everything we do, we build on the energy, experience and passion of our global Parkinson’s community. https://www.parkinson.org/

Parkinson’s Institute and Clinical Center provides comprehensive patient care, while discovering new treatment options to improve the quality of life for all Parkinson’s patients. https://www.parkinsonsinstitute.org/

Parkinson’s UK mission is to find a cure and improve life for everyone affected by Parkinson’s. They want to deliver life-changing new treatments and ensure loved ones get the right care and support to live as well as possible at every stage of the condition. https://www.parkinsons.org.uk/

Parkinson’s T-shirts designed with a purpose beyond fashion. The mission is to empower individuals living with Parkinson’s Disease, providing them with a unique avenue to express themselves and become advocates with confidence. https://linktr.ee/ParkNsonsTshirts

Popcorn for Parkinson’s is an organization which aims to educate others about neurological diseases. Through service and volunteering we raise money to hopefully find a cure for neurogenerative diseases.
https://popcorn4parkinsons.wixsite.com/cure

Power Over Parkinson’s Disease Foundation supports the use of exercise, wellness, education to reduce the symptoms and/or slow the progression of Parkinson’s Disease and other neurodegenerative disorders. https://www.poweroverpd.org

Team Fox is the grassroots fundraising program of The Michael J. Fox Foundation for Parkinson’s Research. https://www.michaeljfox.org/team-fox-endurance

Team Fox Detroit is proud to be one of thousands of Team Fox members worldwide to bring awareness and fundraise locally for The Michael J. Fox Foundation for Parkinson’s Research (MJFF).  https://www.teamfoxinthed.com/

The Brian Grant Foundation provides tools to improve the well-being of people with Parkinson’s. https://briangrant.org/

The Davis Phinney Foundation provides practical tools and inspiration to people living with Parkinson’s. We fund early-phase, innovative research that focuses on exercise, speech, movement and other factors that affect quality of life. https://www.davisphinneyfoundation.org/

The Science of Parkinson’s is very simple: to explain the science and research that is currently being conducted on Parkinson’s in plain English.
https://scienceofparkinsons.com/

Spotlight YOPD was founded because Young Onset Parkinson’s had somehow slipped through the net, certainly in the UK – with a perception that it’s a condition of the elderly.
https://spotlightyopd.org/

Step up for Parkinson’s offers free classes to raise awareness about Parkinson’s disease and the role of the caregiver globally and finally to continuously improve our methods through extended research and development.
http://stepupforparkinsons.com/

Tightrope Impro Theatre is a company specializing in the art of Improvisation. We produce professional improvised theatre and provide a variety of training rooted in Impro. https://tightropetheatre.com/news-%26-resources

YogaReach adaptive therapeutic yoga programs empower clients diagnosed with Parkinson’s Disease with their caregivers. We develop abilities, new life skills, and nurture the power of well-being. https://www.yoga-reach.org/

Young Onset Parkinson’s Network (YOPN) Become part of a community of members looking to live their best lives! Our members celebrate what’s possible, find strength in being resilient, and embrace life beyond diagnosis. https://yopnetwork.org/

Dystonia Partners

Dystonia Medical Research Foundation (DMRF) is an international, non-profit, voluntary organization dedicated to serving people with all forms of dystonia.
http://www.dystonia-foundation.org

Dementia Partners

All Home Care Matters is a podcast and YouTube show devoted to discussing all things home care. There are featured guests, resources, tips, and discussions on important age-related topics to help families as they navigate long-term care matters. https://allhomecarematters.com/dementiatlc/resources/together-for-sharon/

Alzheimer’s Speaks Shifting Society’s Negative Perceptions of Dementia and Care giving at https://alzheimersspeaks.com/ and DementiaMap https://www.dementiamap.com/directory/#!biz/id/653c19078e8d462eb3026432

Dementia Insight’s mission is to bring attention to and spread awareness about dementia. Information about dementia, the various neurodegenerative disorders that cause it, dementia symptoms.
https://www.dementiainsight.org

Dementia TLC seeks to create awareness and support for those affected by Dementia, whether that be individuals living with Dementia, their loved ones, family, friends or carers – we want to be here to support them in any way we can.
http://dementiatlc.co.uk/

Minding Dementia has helped thousands of families in her 30-year career as a behavioral specialist with the cognitive impairments (dementia) that often accompany Parkinson’s disease. Lisa Skinner is also a Certified Dementia Practitioner, a Certified Dementia Trainer, as well as a Certified Dementia Program Director.  https://www.mindingdementiasummit.com/

One Stop Dementia aims to give people a place to start when their loved ones begin to show signs of dementia. Through our forum we provide a platform in which family carers can provide advice, a place to share and gain information about dementia. Join our forum today to become part of our community.
http://www.onestopdementia.com

Research

Florida Atlantic University, Charles E. Schmidt College of Medicine. Marcus Institute of Integrative Health offers several free health and wellness programs and events that encourage patients and community members to participate in fitness and self-care activities that engage both active individuals and those who experience chronic pain. https://www.faumedicine.org/integrative-health/programs/

Charco Neurotech, founded by Lucy Jung – CUE1, a non-invasive wearable device for Parkinson’s, utilizes pulsed cueing and focused vibrotactile stimulation to reduce symptoms of slowness and stiffness resulting in improved movement. Developed by a team of engineers, doctors and neuroscientists, CUE1 offers a novel, non-invasive approach to increasing quality of life for people with Parkinson’s. Using removable medical adhesive to rest on the sternum, CUE1 can provide an immediate aid, activated by the simple push of a button. Pilot tests have resulted in an average improvement of 16% in movement tasks such as using tools, manipulating objects, walking and more. Most importantly participants felt their movement was smoother and better controlled. https://www.charconeurotech.com

Researchers & Scientists

An interview with Encarna Micó Amigo, Biomedical Engineering https://www.togetherforsharon.com/encarna-mico-amigo-biomedical-engineering/

An interview with Bastiaan R. Bloem, MD, PhD, FRCPE: Professor of Neurology at Radboud University Medical Center and Co-Author of End Parkinson’s Disease

https://www.togetherforsharon.com/bastiaan-r-bloem-professor-of-neurology-at-radboud-university/

An interview with Dr. Silvia Del Din, Bioengineering & neurodegenerative diseases

https://www.togetherforsharon.com/dr-silvia-del-din-bioengineering-neurodegenerative-diseases/

An interview with Dr. Ray Dorsey Neurologist, Parkinson’s Specialist & Author

https://www.togetherforsharon.com/dr-ray-dorsey-neurologist-parkinsons-specialist-author/

An interview with Raul Martinez Fernandez, Neurologist and Clinical Researcher: The long and winding road to stop Parkinson’s disease.

https://www.togetherforsharon.com/raul-martinez-fernandez-neurologist-and-clinical-researcher-the-long-and-winding-road-to-stop-parkinsons-disease/

An interview with Małgorzata Kujawska, Ph.D., D.Sc. Professor of Poznan University of Medical Sciences

https://www.togetherforsharon.com/malgorzata-kujawska-ph-d-d-sc-professor-of-poznan-university-of-medical-sciences/

An interview with Dr. Jeanne Loring from Scripps Research on Stem Cells

https://www.togetherforsharon.com/dr-jeanne-loring-from-scripps-research-on-stem-cells/

An interview with Dr. Zoltan Mari, a Neurologist specializing in Parkinson’s and Movement Disorders

https://www.togetherforsharon.com/dr-zoltan-mari-neurologist-parkinsons-disease/

An interview with Dr. Ignacio Mata, Neurogeneticist & World Parkinson’s Congress Science Ambassador

https://www.togetherforsharon.com/dr-ignacio-mata-neurogeneticist-wpc-science-ambassador/

An interview with Jaime Martin, MD, PhD, FAAN Movement Disorders Neurology on Advocacy

https://www.togetherforsharon.com/jaime-martin-md-phd-faan-movement-disorders-neurology-on-advocacy/

An interview with Jorik Nonnekes, Associate Professor & Consultant in Rehabilitation Medicine at the Radboud University Medical Centre on Advocacy

https://www.togetherforsharon.com/jorik-nonnekes-associate-professor-consultant-in-rehabilitation-medicine-at-the-radboud-university-medical-centre-uk-on-on-advocacy

An interview with Dr. Michael S. Okun from the Norman Fixel Institute at the University of Florida Health & Co-Author of the book Ending Parkinson’s Disease: A Prescription for Action

https://www.togetherforsharon.com/dr-michael-s-okun-from-the-norman-fixel-institute-at-the-university-of-florida-health-co-author-of-the-book-ending-parkinsons-disease-a-prescription-for-action/?fbclid=IwAR04jiCBuiew3n4Rlksx8lfXXI_PoFa5qwPCs2PWxBknIfDd_ZQT1CDpgm0

An interview with Luis Oliveira Researcher for the Michael J. Fox Foundation

https://www.togetherforsharon.com/luis-oliveira-researcher-from-the-michael-j-fox-foundation/

An interview with Tiago Fleming Outeiro, Biochemist from Young Parkies Portugal 

https://www.togetherforsharon.com/tiago-fleming-outeiro-biochemist-from-young-parkies-portugal/

An interview with Dr Bhanu Ramaswamy Physiotherapist and Advocate: Working within the Parkinson’s community

https://www.togetherforsharon.com/dr-bhanu-ramaswamy-physiotherapist-and-advocate/ 

An interview with Joao Silva on Biomedical Engineering & PD

https://www.togetherforsharon.com/joao-silva-on-biomedical-engineering-pd/

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Fitness-Moving For Support & A Cure

Pacing for Parkinson’s (P4P) is one of the largest charity teams in the Baltimore Running Festival. It is a volunteer-led campaign that raises awareness of and funds for Parkinson’s disease (PD) research, community outreach, education, and patient care at Johns Hopkins.
https://pacing4parkinsons.org/

Rock Steady Boxing mission is to equip our affiliates and empower the coaches to improve the quality of life of people with Parkinson’s disease through a non-contact, boxing-based fitness curriculum.
https://pedaling4parkinsons.org/

Punch 4 Parkinson’s is specifically dedicated to studying the effects of one on one boxing training along with hand and eye coordination drills for Parkinson’s patients.
https://punch4parkinsons.com/

PushUps4Parkinsons challenges the world to come together to push-up for a cure while enriching and enhancing the lives of people with Parkinson’s and their caregivers.
https://pushups4parkinsons.org/

Music Therapy, Movies & Local Organizations

American Music Therapy Association’s purpose is the progressive development of the therapeutic use of music in rehabilitation, special education, and community settings.
https://www.musictherapy.org/about/musictherapy/

Boca Ballet Theater, Dancing for Parkinson’s  (BBT4PD)  is a Certified Dance for PD® program for those living with Parkinson’s. The benefits include increased mobility, better balance and posture, improved mood, decreased symptoms, and reduced sense of isolation associated with disease. https://www.bocaballet.org/bbt4pd

Can Do Canines is dedicated to enhancing the quality of life for people with disabilities by creating mutually beneficial partnerships with specially trained dogs. https://candocanines.org/

Creative Arts Therapies of the Palm Beaches exists to cultivate health and wellness through creative arts therapies, provide a network for creative arts therapists and our supporters, and share relevant resources worldwide. https://catpb.com/

The New Music is a non-profit feature film revolving around a classical pianist who gets diagnosed with Young Onset Parkinson’s.
https://www.facebook.com/thenewmusicfeature

Charity Races, Walks & Events

APDA Optimism Walk is a fundraising event and an important opportunity for friends, families, and individuals coping with Parkinson’s to take their passion and concern and turn it into a positive experience with a significant impact on this devastating disease.
https://www.apdaparkinson.org/get-involved/optimism-walks/

or in memory of my mother here:

https://apdaparkinson.donordrive.com/campaign/togetherforsharon

Parkinson’s IQ + You is a series of free in-person events designed to empower patients and care partners to manage the disease, learn about the latest research and connect with local resources. These events are fully accessible and designed for people at every stage in their journey with Parkinson’s. https://www.michaeljfox.org/parkinsons-iq-you

Parkinson’s Foundation Moving Day is your chance to speak up about Parkinson’s disease and move others to take action. It is a movement for change—towards more awareness, more funding, and more understanding of a disease that affects so many of our family and friends.
https://movingdaywalk.org/

The Parkinson’s Unity Walk (PUW), a grassroots organization, began in 1994 through the dedicated efforts of patients, families, support groups, and friends who were affected by Parkinson’s disease.
https://www.michaeljfox.org/unitywalk