An interview with Shane Crimmins, YOPD ARE YOU AWARE? And Advocacy through TikTok
Biography
I grew up and live in Sacramento, Ca. I Graduated high school in 1984. I worked odd jobs until I was 22. I started a business and bought a house at 23. At 25 was involved in radio, TV and cinema. At 32 I got married. At 41 I got divorced. At 48 I started to get tremors in my left ankle. It was misdiagnosed with essential tremors. At 58 YOPD
Can you tell me more about your Advocacy?
We need to bring awareness of YOPD and Parkinson. We need to create a voice and start a movement.
What is your passion and how did you get involved in Parkinson’s awareness and hope for a cure?
My passion is to create more awareness about this disease. Before being diagnosed I knew very little about this disease now I know much more about it and I know that we need more funding and awareness to work toward a cure.
What type of goals do individuals with Parkinson’s have when seeing your Advocacy?
The goal is to create awareness and raise funds for furthering testing trials and helping us find a cure
What effect can your Advocacy have on an individual with Parkinson’s?
They become more aware of the disease and feel more comfortable with it
What would you like to see as a future goal for your Advocacy?
Simple a cure
What events do you participate in?
Local seminars. Fund raisers anything to do with PD
How can someone get in touch? What is your website?
Tiktok @parkinsonswithshane… youtube https://youtube.com/@parkinsonswithshane?si=GhgGrlhBOlk6CYYU
In your opinion, what is the key to effective advocacy?Â
Speak loudly and speak often
How can we better fundraise to support a cure for Parkinson?
Start a Grassroots program. I have T-shirts that I sell to allow me to donate to local Parkinson chapters
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Why should people who don’t have Parkinson’s care about this?Â
Because they could be next to develop it.
Have you had any family members or relatives affected by Parkinson’s disease?
No
If you had one song that would tell us more about you or represent your life, which song would it be?
Lean on me.
If you had one final statement or quote you could leave for the Parkinson’s community, what would it be?
Get involved