An interview with Kevin McAney: But you meet such nice people!
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Biography
I am originally from England and migrated to Australia 40years ago. I have been a Police officer in both countries and worked in Private security in Australia after leaving the police. I owned and worked in companies in the security manpower and electronic sectors and in the training sector for security, management and safety. I have two grandchildren and two greatgrandchildren, and I have been married to my wife, Pauline, for nearly 50 years. Pauline was diagnosed with Parkinson’s in 2018 and with Parkinson’s Dementia in 2024. She is now in full-time residential care.
Can you tell me more about your Advocacy?
Since Pauline’s diagnosis I have been actively involved in advocating and raising awareness for Parkinson’s through Parkinson’s Queensland, Restoring Hope Parkinson’s Therapy, Shake It Up Australia and The Park Parkinson’s Wellness Centre. I also chaired the Consumers Advocacy Group for Parkinson’s Australia from 2020 to 2022.
What is your passion and how did you get involved in Parkinson’s awareness and hope for a cure?
My passion is quite simply to raise awareness about Parkinson’s at all levels, to advocate for those living with Parkinson’s and work towards supporting organization providing treatments and ultimately a cure.
What type of goals does individuals with Parkinson’s have when working with you?
I offer support and friendship to individuals, careers and families.
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What effect can your Advocacy have on an individual with Parkinson’s?
A common comment is that they realize that a) they are not alone b) they can now find ways to get information and support, and see a future pathway
What would you like to see as a future goal for your Advocacy?
Through increased awareness, to get Government to act on support and research for the 2nd most common neurological disease which can eventually find a cure.
What events do you participate in?
Fundraising treks, Conferences, Local Support Groups – Participating and assisting in the organization and promotion of the events. Anything that raises awareness and education.
How does this also assist the caregivers?
It provides a platform for them to do the same and realize that this is a way of supporting and caring for their loved one, and a positive release experience for themselves………..and you meet such nice people!
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How can someone get in touch? What is your website?
www.linkedin.com/in/kevinmcaney
How can others also become advocates for awareness?
Educate themselves on what is happening locally, nationally and globally about Parkinson’s. And don’t be spectators. Get involved.
What action have you taken since you or your loved one has been diagnosed with Parkinson’s?
I have tried to find out as much as possible about Parkinson’s and treatment/management options available. I communicate and build relationships with allied health providers and specialist Parkinson’s neurologists. I watch webinars and attend conferences and presentations to find out how I can provide the best help and support for Pauline. I also share this information with others who are living with Parkinson’s.
How well were you informed about what actions you could take i.e. What to do Next once the diagnosis was confirmed?
One of the challenges for someone who has just been diagnosed is what to do next? The information is not always provided by the health professional who gives the “diagnosis”. I got a leaflet which had information on local support organizations but nothing further and no follow-up. It wasn’t until several weeks after I had seen the neurologist that I got an appointment at a Movement Disorder Clinic (we are fortunate to have one in this area) and got additional information and support services.
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In your opinion what is the key to effective advocacy?Â
Learning, Listening and finding out what you can do to help those living with Parkinson’s
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How can we better fundraise to support a cure for Parkinson’s?
More events that raise awareness, more lobbying and advocating politicians, more media exposure using sporting, entertainment and well-known personalities.
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What other activities do you undertake to help improve and support your daily living Eg exercise and alternative remedies?
Coupled with their medications people with Parkinson’s can maintain a better lifestyle by using exercise, the correct diet (MIND/Mediterranean or PRO) and social connections and activities.
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Why should people who don’t have Parkinson’s care about this?Â
As a career it is important that you keep well, physically, mentally and emotionally. I exercise at the local gym weekly, meditate and pray daily, read self-help/positive/motivational books and articles, and maintain a good social network. I also (try) to eat well and get fresh air. All people should do this.
Have you had any family members or relatives affected by Parkinson’s disease?
Only my wife.
If you had one song that would tell us more about you or represent your life, which song would it be?
Always Look on The Bright Side of Life (Monty Python’s – Life of Brian)
If you had one final statement or quote you could leave for the Parkinson’s community, what would it be?
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TogetherForSharon® In memory of my mother, Sharon to voice awareness & hope for a Parkinson’s Disease cure. Sharon’s Son, George