An interview with John Scotter from Shaky Radio on October 5, 2023 by George Ackerman, Ph.D, J.D.
My name is John Scotter. I was diagnosed in 2016 with Parkinson’s. It was not a great shock as it had taken me two years to reach this diagnosis. Dr Google and I forced my doctor to send me to a neurologist. By that time i knew I was developing it. After scans and drug trials it was confirmed. It to me was not the end of life but a new beginning.
Since that time I started the journey of having neuro Physiotherapy. From that I joined a PD warrior course. Joined groups and generally learnt all about Parkinson’s. This is an ongoing process as is an endless open subject.
In 2019 I started shaky radio with my wife Susan. This primarily is to raise awareness of Parkinson’s. We offer support from the website of all aspects of living with Parkinson’s. Very quickly we had a team of DJ’s all with Parkinson’s doing shows for the station. Now some years after providing entertainment 24 Hours a Day every day of year for the Parkinson’s community which largely ignores us. We have now turned more into a media company. We produce information for social media and our websites. We have a Facebook group for those living with Parkinson’s, a safe place to get support. The main aim is to provide information and pull together information as a central point for those living with Parkinson’s for the whole community. It’s not about me it’s more helping the community travel the journey of Parkinson’s with understanding and empathy.
Can you tell me more about Shaky Radio?
Started in 2016. Run one entertainment radio station for the Parkinson’s Community. A second Radio channel gives round the clock streaming of podcasts from Parkinson’s organizations on various aspects of living with Parkinson’s.
We have all social media outlets to promote awareness.
What is your passion and how did you get involved in Parkinson’s awareness and hope for a cure?
As both myself and my wife Susan have Parkinson’s, we strive for a cure and more understanding of the disease.
What type of goals do individuals with Parkinson’s have when working with you in the field?
Most people who we have worked with have a common goal of making life better for fellow suffers.
What events do you participate in?
Various local and national groups. Walks and exhibitions
How can someone get in touch and sign up to help? What is your website?
We have three websites to promote awareness.
What is the best advice you can live to someone diagnosed with Parkinson’s.
Best advice for those living with Parkinson’s is don’t hide, join in fellowship and be kind a compassionate to those travelling the same journey.
If you had one final statement or quote you could leave for the Parkinson community, what would it be?
Parkinson’s awareness is not just for one day a year! It’s for every day.