Christophe Mathevet from Association Paddle contre Parkinson

An interview with Christophe Mathevet from Association Paddle contre Parkinson on October 29, 2023 by George Ackerman, Ph.D, J.D.




I am 56 years old, father of 3 girls. My first symptoms started in 2009, but the disease started in 2018, and was actually diagnosed in 2020 after two years of therapeutic wondering.


Can you tell me more about your advocacy?


I initiated the creation of an association called «Paddle Contre Parkinson.


The aim of the campaign is to raise awareness of the disease among the public, to encourage patients to maintain social ties and to practice physical activities, and to collect donations.


 What is your passion and how did you get involved in raising awareness of Parkinson’s disease and hoping for a cure?


I am passionate about sliding sports, I still practice surfing, stand up paddle.


I do paddle races, I take the opportunity to make the disease known to people who are not sick, and h I try to convince patients of the benefits of sport.


What kind of goals do people with Parkinson’s disease have when working with you?


The association allows non-sports patients to start in stand up paddle, as we know the disease it allows to establish a climate of confidence, in general it goes well and the patients continue the paddle in autonomy after.


What type of training and how long are the programs?


Nothing is defined in advance; this is on a case-by-case basis.


What effect can your advocacy have on someone with Parkinson’s disease?


I try to show new patients that life goes on despite the diagnosis. We must accept to be different. And especially not to turn in loop on his disease, nothing worse than to depress in addition.


What events do you attend?


I participate in Puddle races, and our association organizes a Parkithlon , that is to say sporting events in several cities in France


How does your advocacy also help caregivers?


Parkinson’s disease is complex, we help caregivers better understand the disease to better understand the difficulties of patients. Caregivers are also advised not to hesitate to seek help.


How can someone get in touch? What is your website?


By email


How can others also become advocates of awareness?


I believe that there is no recipe, everyone must do as they feel, with their strengths and weaknesses. The main thing is to want the good of all.


What do you think is the key to effective advocacy?


Good knowledge of the disease, and sincerity, desire to help.


If you had one last statement or quote to leave to the Parkinson community, which one would it be?


Love life, without being indifferent to others.