In Memory, Interviews

Ava Butler: Parkinson’s A Love Story with Dementia for Dessert

An interview with Ava Butler: Parkinson’s: A Love Story with Dementia for Dessert on    March 6, 2024 by George Ackerman, Ph.D, J.D.




I am an organizational development consultant and leadership coach.  I was married to my dear husband Richard for 25 years.  In 2010, he was diagnosed with Parkinson’s disease, and he passed away on March 26th 2017.


He needed 24/7 support for the last 3 years of his life.   It was a tremendous burden but also an honor to care for him until the end.


Can you tell me more about your advocacy?


I wrote a book called Parkinson’s: A Love Story with Dementia for Dessert.  The book outlines the journey that Richard and I experienced.  I wrote to as part of my own healing process and to help others along their own journey.


I act as a friend and mentor to care partners who are less far along their journey.


To order the book visit:


What is your passion and how did you get involved in Parkinson’s awareness and hope for a cure?


Parkinson’s is a nasty disease, and we all pray for a cure soon.


What type of goals do individuals with Parkinson’s awareness have when working with you?


They want to know how to best deal with the issues they face currently and know what to expect in the future.  They want practical advice and insights, and to talk with someone who understands their journey.


What effect can your advocacy have on an individual with Parkinson’s awareness?


I am a good listener and can offer practical advice and insights.


What would you like to see as a future goal for your advocacy?


I’m happy to help as many people as I can.  Please feel free to refer people to me as you think appropriate.


What events do you participate in?


I am on the Board of the Parkinson’s and Movement Disorder Alliance.


How does this also assist the caregivers?


Caregivers and those with Parkinson’s need support, information and advocacy.


How can someone get in touch?  What is your website?   This is my website to raise awareness about Parkinson’s and Lewy body Dementia.  This is my consulting website.  I am an organizational development consultant and leadership coach.


My email is


How can others become advocates? 


Contact your local organizations, the Michael J Fox Foundation, the Parkinson’s and Movement Disorder Alliance and reference your website.

And just be a good friend and neighbor.


If you had one final statement or quote you could leave for the Parkinson community, what would it be?


Let’s support each other, both individually and collectively.